Patient Resources/ Helpful Links

This is a collection of links to organizations, educational resources and reference services that some patients have found to be useful. This list is by no means inclusive and is only provided as some potential informational resources.

Topic	Contact Information
General Medical Information
	Medline http://www.ncbi.nlm.nih.gov/PubMed/
	Medscape http://intapp.medscape.com/px/medlineapp/medline?cid=med
	U.S. National Library of Medicine http://www.nlm.nih.gov/
	National Health Information Center http://www.health.gov/nhic/
	Healthfinder http://www.healthfinder.gov/
	Agency for Healthcare Research Quality http://www.ahrq.gov/
	National Guidelines Clearinghouse http://www.guideline.gov/
General Neuro-Related Information
	Neuro:// On-Call (American Association of Neurological Surgeons) http://www.neurosurgery.org/
	American Academy of Neurologists http://www.aan.com/public/index.cfm
	National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/
	Society for Neurosciences http://web.sfn.org/
	American Academy of Neurological and Orthopedic Surgeons http://www.aanos.org/
Alzheimer’sDisease
	Alzheimer’s Association http://www.alz.org/ Telephone: 1-800-272-3900
Aneurysms and AVMs
	Aneurysm and AVM Support Group http://www.westga.edu/~wmaples/aneurysm.html
Aphasia
	Academy of Aphasia http://www.academyofaphasia.org/ Telephone: 1-925-372-2670
	National Aphasia Association http://www.aphasia.org/ Telephone: 1-800-922-4622
Back Care
	American Academy of Orthopedic Surgeons http://www.aaos.org/wordhtml/home2.htm Telephone: 1-800-346-AAOS
	American Academy of Physical Medicine and Rehabilitation Physicians http://www.aapmr.org/
	American Chiropractic Association http://www.amerchiro.org/ Telephone: 1-800-986-4636
	National Institute of Arthritis and Musculoskeletal and Skin Disease http://www.niams.nih.gov/ Telephone: 1-877-22-NIAMS
Brain Tumor Resources
	National Brain Tumor Foundation http://www.braintumor.org/ Telephone: 1-800-934-CURE
	The Brain Tumor Society http://www.tbts.org/ Telephone: 1-800-770-8287
	American Brain Tumor Association http://www.abta.org/ Telephone: 1-800-886-2282
	The Children’s Brain Tumor Foundation http://www.childhoodbraintumor.org/ Telephone: 1-977-217-4166
	Acoustic Neuroma Association http://anausa.org/ Telephone: 1-770-205-8211
Cancer
	American Cancer Society http://www.cancer.org/docroot/home/index.asp Telephone: 1-800-ACS-2345
	Cancer Information Service http://cis.nci.nih.gov/ Telephone: 1-800-4-cancer
Caregiver Support
	Well Spouse Foundation http://www.wellspouse.org/ Telephone: 1-800-838-0879
Clinical Trials
	National Institute of Health http://www.cc.nih.gov/
	National Institute of Health Information Center: Patient Recruitment and Public Liaison Office http://www.cc.nih.gov/ccc/prpl/ Telephone: 1-800-411-1222
	National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/
	Brain Tumor Trials http://www.virtualtrials.com/
	Society for Women’s Health Research http://www.womens-health.org/ Telephone: 1-202-223-8224
	National Organization of Rare Disorders http://www.rarediseases.org/
Epilepsy Information
	The Epilepsy Foundation http://www.epilepsyfoundation.org/ Telephone: 1-800-332-1000
Grief
	Compassionate Friends (Grief Support after loss of child) http://www.compassionatefriends.org/ Telephone: 1-800-969-0010
Head Injury Resources
	Brain Injury Association of America http://www.biausa.org/Pages/splash.html Telephone: 1-703-761-0750
	ThinkFirst http://www.thinkfirst.org/
	The International Brain Injury Association http://www.internationalbrain.org/
Headache
	American Council for Headache Education http://www.achenet.org/
	National Headache Foundation http://www.headaches.org/
	M.A.G.N.U.M (Migraines) http://www.migraines.org/
Pain Resources
	The American Pain Foundation http://www.painfoundation.org/
	The American Chronic Pain Foundation http://www.theacpa.org/
	The American Academy of Pain Management http://www.aapainmanage.org/
Parkinson’s Disease/Tremors
	National Parkinson Foundation http://www.parkinson.org/ Telephone: 1-800-327-4545
	American Parkinson’s Disease Association http://www.apdaparkinson.org/user/index.asp Telephone: 1-888-400-2732
	Coping with Essential Tremor http://www.essentialtremor.org/
Practitioner Databanks
	National Practitioner Databank http://www.npdb-hipdb.com/
	American Medical Association Physician Select http://www.ama-assn.org/aps/amahg.htm
Spinal Cord Injury
	American Spinal Cord Injury Association http://www.asia-spinalinjury.org/home/index.html Telephone: 1-404-355-9772
	National Rehabilitation Information Center for Independence http://www.naric.com/
	American Paraplegia Society http://www.apssci.org/
Stroke
	The Brain Matters http://www.thebrainmatters.org/stroke.htm
	National Stroke Association http://209.107.44.93/NationalStroke/Default.htm
	American Stroke Association http://www.strokeassociation.org
	American Heart Association http://www.americanheart.org/presenter.jhtml?identifier=1200000
Trigeminal Neuralgia
	The Trigeminal Neuralgia Association http://www.tna-support.org/welcome.html
	Wellness National Wellness Institute http://www.nationalwellness.org/nwi_Home/nwi.asp